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Eczpress yourself : to mark National Eczema Week the National Eczema Society are asking patients to record their own eczema story and to send it to them so they can share it with those who need to hear it most.
National Eczema Week (16-24 September) will focus on the power of sharing eczema stories in the ongoing battle with this incurable and isolating condition. Eczema treatments and triggers can prevent patients from experiencing life in the same, spontaneous way as others and can leave them feeling exposed and vulnerable.
“I thought it was just me” is something that is heard every day when a patient or carer gets to hear someone else’s eczema story for the first time. Sheer relief of knowing that they are not alone is palpable and the comfort derived is enormous. The more stories that can be collected and shared, the stronger the eczema community will be individually and collectively.
To be a part of this unique project, patients simply need to record (audio or video) their eczema story and send it to firstname.lastname@example.org
Things that might be included are: When the eczema first developed, what the symptoms were and how it was diagnosed. How the eczema has changed over time and what treatments have been tried. What the triggers are and how they were identified. How they've coped with the challenges the condition presents either as a patient with eczema or the parent of a child with eczema. The impact of the condition in terms of school, work, activities, holidays, friends, family, relationships, interests, disturbed sleep etc and lots of anecdotes!
Recordings should be no longer than10 minutes and may be featured on the National Eczema Society’s website, YouTube channel, Instagram and other social media.